JONAH: Almost a year ago a facebook friend from high school introduced me the the William's and their son Jonah in particular.
EB: Epidermolysis bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. They call is "butterfly syndrome" because the skin is as fragile as butterfly wings
An AUCTION: To celebrate Jonah's first birthday (a huge milestone for any baby but especially for this one) friends put together an auction to raise awareness and money for DebRA, an organization trying to find a cure. SO... Feb 23rd-27th you can go to this site and bid on fun things and help out all at the same time!
...Look closely come auction time, you might just see a personalized plate from Platters&Splatters on the auction block...
No comments:
Post a Comment